We’re back in Boston for a series of follow-up procedures, but more importantly, to find out how she’s healed in that time…
It’s surreal to be back. To think we once called this place ‘home’ for 5 months is almost difficult to grasp. There was so much uncertainty and so much fear, and yet it seems so long ago, but we have to remind ourselves it was just last year. But I will say this, it’s always great seeing a familiar face. We made such incredible friends here, and reuniting with our entire staff of doctors and nurses who were with us every step of the way has been truly heart-warming.
Today, we arrived in the pre-op room at about 6am this morning, and just after a short visit with some of our favorite faces in the 7 North NICU. I was nervous about being back this time since Everly is a bit older and more aware. However, the silver-lining is that I didn’t have to revisit watching her head through the hallway into the double doors all alone. This time, I got to go with, and be there holding her hand until she was soundly sleeping. I was more at peace as I knew she was in the best hands possible with her team of doctors. She’s so brave…
They performed an endoscopy on both her trachea and esophagus in which the doctors stick a camera down her throat to exam how she looks, and the results were INCREDIBLE!!! Both her trachea and esophagus looked so completely normal that it was hard to tell that she ever had surgery to begin with. Smiling cheek to cheek, the doctors stated “she has a SUPERMODEL esophagus”. The “Gisele Bundchen of EA” as they put it!!!
BEFORE
AFTER
On top of that, they decided to remove her feeding tube because it’s no longer necessary! To see her for the first time ever without her feeding button is life changing. It’s been the goal since day 1 and now we’ve reached it. We are so blessed and feel like the luckiest parents ever. This is a huge milestone for all of us including her doctors to see if everyone’s efforts paid off and they sure have in a big way!
Recovering from the OR
With & Without Mic-key button!